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Publications

Establishing the content validity of PROMIS Pediatric pain interference, fatigue, sleep disturbance, and sleep-related impairment measures in children with chronic kidney disease and Crohn’s disease.

Forrest, C.B., Forrest, K.D., Clegg, J.L. et al. Quality of Life Research, February, 2020.

Expanding construct validity of established and new PROMIS Pediatric measures for children and adolescents receiving cancer treatment.

Reeve, B.B., McFatrich, M., Mack J.W., et al. Pediatric Blood & Cancer, January, 2020.

Reliability and validity of PROMIS® pediatric family relationships short form in children 8–17 years of age with chronic disease.

Cox, E.D., Connolly, J.R., Palta, M. et al. Quality of Life Research. August, 2019.

Clinical meaning of PROMIS pain domains for children with sickle cell disease.

Singh A, Panepinto J. Blood Advances, July 2019, 3(15), 2244-2249.

Use of the new pediatric PROMIS measures of pain and physical experiences for children with sickle cell disease.

Singh, A., Dasgupta, M., Simpson, P. M., & Panepinto, J. A. Pediatric Blood & Cancer, January 2019, 66(5), e27633.

Content validity of the PROMIS® pediatric family relationships measure for children with chronic illness.

Flynn, K. E., Kliems, H., Saoji, N., Svenson, J., & Cox, E. D. Health and Quality of Life Outcomes, October 2018, 16(1), 203.

Importance ratings on patient-reported outcome items for survivorship care: comparison between pediatric cancer survivors, parents, and clinicians.

Jones, C.M., Baker, J.N., Keesey, R.M., Eliason, R.J., Lanctot, J.Q., Clegg, J.L., Mandrell, B.N., Ness, K.K., Krull, K.R., Srivastava, D.K., Forrest, C.B., Hudson, M.M., Robinson, L.L., & Huang, I. Quality of Life Research, July 2018, 27(7), 1877-1884.